Thank you for posting your EDS photos...you could be my twin! Except I'm older...I think! What did the doctors have to do to diagnose you? I live in Ontario, Canada ...do you have facebook? I'm under Carolyn Slizys-Scholey...it would great to hear from you.Thanks again Carolyn

said sunshyne0714 11 months 25 days ago

Hello! I was doing a little research on the internet regarding EDS and stumbled on your site. I was wondering if you would like to be a pen pal so to speak? I live in Wisconsin, USA and have EDS III. I would really be interested in knowing some of your history with this disorder. Let me know. I will leave you my email. It is zandervan@charter.net Please label the subject line EDS-webshots, so I know you have emailed. Thanks and hope to hear from you. Teri

said tanne7171 2008.03.17 at 17:25:28 PDT

I think that you are amazing and because of the photos you posted on her it will allow me to try and explain what is happening to me. Im 25 with a little one and my life over the last couple years have been difficult. I believe very stongly that i suffer from ehlers-danlos but its very hard to get help for what i believe. From my neck to my shoulders to my ankles are subluxed and though i have no had a complete dislocation i feel that my hip is going to soon. Because of your photos i know believe even more that this is a huge possiblity. Please email me anytime

said finnigantaylor 2008.01.07 at 15:58:35 PST